Wednesday, September 19, 2012

Intro to Me (Part 1 -- Laundry List)

Hello and welcome to my journey to try to get a bit healthier.   Although this will be a lifetime journey, I chose to give myself 90 days to find the path and get used to it.  In this blog, I will write about my progress and setbacks and challenges.  Warning:  I will complain... a lot!  So, if you don't want to read someone whining about their aches and pains and stomach issues and how they want a donut, don't read!  I keep things mainly to myself in other venues (facebook, work) but here, I'm going to let it all hang out.   I don't mind some advice (a recipe you've liked, someone who has the same issues that has found something that works well) and I appreciate support... but I don't want lectures (especially when I have setbacks).

Okay, so just a teensy bit about me.  I'm 43.  I'm overweight (officially, I need to lose 33 lbs to be considered in healthy range... ideally, that would be closer to 40 lbs.   For my 90 days, 10 lbs will make me ecstatic).  I have a variety of health issues, which I will go over below. I take a ton of meds.   I'd like to be able to get off some of my meds and improve my health status at least a little bit.  I don't think, however, that I can improve to the point that I will be able to get off more than 1 or 2 of them and that I can "cure" any of my illnesses, but if I can increase my energy and be able to get more done and know that I'm trying... well, I'll be happy.

So, what do I have?  Here's my laundry list of the significant things:

  • Diabetes -- at the moment, insulin-dependent:   4 shots a day (3 fast acting & 1 long release)
  • Dercum's Disease (DD) -- rare disease characterized by multiple painful fatty tumors....  also comes with a host of issues.   More info can be found here:'s_disease
  • Gastroparesis (GP) -- stomach paralysis which causes delayed gastric emptying...
  • Idiopathic Hypersomnia/Chronic Fatigue Syndrome -- depending on which doc you ask.  LOL.  I go with the Sleep Center, which diagnosed the IH.  They felt it was narcolepsy, but I was one REM shy of the diagnosis.   I also have mild sleep apnea.   The IH/narco causes sleepiness during the day and will make me wake up to hallucinations -- hypnopompic -- at night if I don't take a sleeping pill
  • Fibromyalgia (FM) -- to be honest, I'm not sure about this one.  I think maybe it is just the pain from my Dercum's.   But, I've been diagnosed.
  • Chronic Kidney Stones  -- Have passed over 50 since I was 19.  Currently have two small ones (1-2mm each) in each kidney
  • New Diagnosis:   Bile Gastritis -- I've been researching and this can be a chronic illness if I'm not careful
  • High Blood pressure (treated with meds), high tryglycerides, fatty liver
  • Raynaud's Disease (makes me very sensitive to cold  & you'll see me with ear muffsif the temp dips below 60 degrees!)
  • Depression, anxiety, OCD (I have several ways this is manifested which I attempt to keep hidden from most.  I will just talk about it in general terms, like "My OCD was a bit better today...")
  • Migraines -- nearly always on my left side.  I rate them from a level 1-3, with 1 being throbbing and just annoying and 3 being nauseous and light sensitive and can't do anything
  • I also went into early peri-menopause a few years ago... most of the symptoms have passed, but I still get them from time to time.
  • Irritable Bowel -- probably caused by the other issues I have (DD, GP)

No comments:

Post a Comment